Adult Survivors of Childhood Chronic Disease: Focus on CHD

Webinar Summary

A growing number of pediatric patients with childhood-onset chronic illnesses and congenital conditions are surviving to adulthood. Some patients with conditions such as congenital heart disease (CHD) continue to receive inpatient care from pediatric hospitals well into adulthood, or they are cared for in an adult hospital. As the most common condition in this category increases, how prepared are you to care for a patient with CHD?

Join us as advanced practice nurses Kathy Murphy and Teresa Lyle discuss the importance of understanding the physical, psychosocial and psychological challenges of these patients as they enter the hospital and out patient setting for treatment. Through reviewing evidence-based practices and using a case study approach, this webinar is designed to help participants become aware of the incidence of CHD, and learn best practices to benefit the care of these patients in their practice settings.

Objectives

Discuss a case study of a pediatric patient with CHD, including a brief review of the surgical procedure and altered anatomy that results in potential challenges for patient, family and caregivers.
Explain the incidence of the disease and scope of the problems encountered by the pediatric congenital heart disease patient who survives into adulthood.
Describe the barriers to transition from childhood to adulthood that may occur for the patient with a CHD, as well as for their family.

Presenters

Teresa Anne Lyle

An advanced practice nurse, Lyle is an assistant professor for nursing at Florida Southern College, with teaching specialty in pediatrics and evidence-based practice research. With extensive pediatric, cardiovascular and advanced practice experience in various clinical areas, she has focused on adolescents and young adults, promoting lifelong specialty care and successful transition from pediatric to adult care for complex chronic cardiac conditions. She has been involved in research with CHD self-care and transition, activities and exercises for CHD, and lifelong chronic health conditions, and has numerous publications and presentations on the topic of CHD. She holds professional membership in the American Heart Association, Adult Congenital Heart Association, American Academy of Nurse Practitioners, American College of Cardiology, Chattanooga Area Nurses in Advanced Practice, Sigma Theta Tau (National Honor Society of Nurses) Zeta Alpha Chapter, Chattanooga, Tennessee and the International Society for Adults with Congenital Cardiac Disease.

Kathy A Murphy

A clinical nurse specialist/pediatric nurse practitioner for the Sibley Heart Center at Children’s Healthcare of Atlanta, Murphy has a special interest in providing family-centered care for children with congenital heart disease (CHD) and their parents/caregivers. She is the primary developer of “Taking Charge of Your Heart,” a computer-based training tool for empowering teens with CHD to learn self-care management skills for transitioning to adult cardiac care. Kathy has also served on the Planning Committee for teen transition conferences and with her background as a clinical nurse specialist/pediatric nurse practitioner for 26 years at Children’s Healthcare of Atlanta in Cardiac Services, has extensive caring for patients from birth through 21 years of age.

Continuing Education Disclosure Statement

Successful Completion

Learners must attend/view/read the entire activity and complete the associated evaluation to be awarded the contact hours or CERP. No partial credit will be awarded.

Disclosure

This activity has been reviewed by the Nurse Planner. It has been determined that the material presented here shows no bias. Approval of a continuing education activity does not imply endorsement by AACN or ANCC of any commercial products displayed or discussed in conjunction with the activity.

Accreditation

The American Association of Critical-Care Nurses (AACN) is accredited with distinction as a provider of continuing nursing education by the American Nurses Credentialing Center’s (ANCC's) Commission on Accreditation, ANCC Provider Number 0012 (60 min contact hour). AACN has been approved as a provider of continuing education in nursing by the California State Board of Registered Nursing, California Provider number CEP1036 contact hours (50 min contact hour).

AACN programming meets the standards for most states that require mandatory continuing education contact hours for license and/or certification renewal. AACN recommends consulting with your state board of nursing or credentialing organization before submitting CE to fulfill continuing education requirements.